New website for epilepsy launches on Scotland’s national day
If epilepsy is part of the work you do in the health, social care or voluntary sector then the Epilepsy Consortium Scotland (ECS) website is set to be a valuable information tool. Families and individuals affected by epilepsy will also be interested in the launch of this new service.
Epilepsy Consortium Scotland chair Phil Robinson explained: ‘Our members help to highlight important issues affecting many of the 55,000 people with epilepsy in Scotland. Our new website shows how ECS is drawing attention to significant areas of concern. One key area is epilepsy service provision across the country. ECS can offer suggestions for policy changes and ideas for further improvement. We do feedback the informed views of our members from various public, private and voluntary organisations, and those people with epilepsy they represent. We also raise matters of concern directly with national agencies, MSPs and the Scottish Government so that people with epilepsy can receive optimum and continued services.
‘Many MSPs have already supported our efforts to ask local health boards to adhere to the latest national guidance for adults with epilepsy (SIGN). If all these recommendations were implemented it would effectively take the care and management of epilepsy to a whole new level. One that would be the envy of the world. ECS is grateful to each MSP, including the First Minister, who has vowed over this last year to do something for epilepsy. It seems only fitting that the Consortium’s new website should be launched on Scotland’s national day.’
ENDS
Notes to Editor
The Epilepsy Consortium Scotland (ECS) is an umbrella body aiming to bring issues concerning an estimated 55,000 people living in the country with epilepsy to the attention of policy makers and the Scottish Government. It also offers an important channel for comprehensive feedback on what is happening in the field of epilepsy at a local and national level. ECS acts as a collective voice for the wider epilepsy community in Scotland. Current membership details at W:www.epilepsyconsortiumscotland.co.uk
In June 2015, the SIGN (Scottish Intercollegiate Guidelines Network) revised guidance: SIGN 143, Diagnosis and management of epilepsy in adults was launched. MSPs have been informed about the guidance at a Cross-Party Group on Epilepsy meeting and at an ECS exhibition for National Epilepsy Week in the Scottish Parliament.
For more details of ECS please call the Chair Phil Robinson: 07849 767963 or email E: phil295991@gmail.com or enquiries@epilepsyconsortiumscotland.co.uk
Press Release:
No Embargo: Wednesday 30 November 2016